Autism and me – An insight into my characteristics

Autism

To my knowledge, everybody on the Autistic spectrum struggles with different aspects. Whether that’s beginning a conversation, using public transport alone or becoming comfortable with wearing only a specific brand/item of clothing.

For example, I’m obsessed with (vegan) Doc Martens and no longer feel comfortable wearing other footwear types. My friends Etta and Ava (also on the spectrum) love vintage clothing and have a preference for Lindy Bop in particular.

Our struggles can often result in sensory overloads and feelings of discomfort whilst we struggle to process bundles of information from the world around us.

I prefer not to relate to my struggles as “symptoms”. My Autism isn’t a disease, it doesn’t require a cure.

Feelings and emotions.

People on the spectrum are often misunderstood as being unable to feel. Though, in fact, the emotions we feel can be more complex than those without Autism. I personally find it hard to find a comfortable and maintainable balance with my moods, therefore either being extremely happy or worryingly low.

I believe that people with Autism are increasingly more sensitive than those without, or at least that’s the way it’s been established in my case.

I personally struggle with understanding and expressing my emotions. I quickly become distressed and go into meltdown following the anguish I hold to be able to release my thoughts, as opposed to managing them alone. I cannot always express the times I feel down, but it’s made easier in the form of emailing.

Busy places.

People with Autism often become distressed in situations filled with lots of people, due to the sensory overloads we face. The noise can become daunting, we can quickly feel trapped, the crowds can seem overwhelming and as though there is no escape, and the anxiety levels start to run high.

I prefer quite, solitary places. So the supermarkets offering Autistic friendly quiet hours definitely have my approval!

Loud noises.

It’s often commented upon that I have sensitive hearing, as I regularly comment on noises I have the ability to hear whereas those around me don’t. Ie: background noise on a tv programme or the sound of my cat from a far distance. This also means that I struggle with loud noises, I dislike the sounds of hoovers and the sirens of emergency services passing by, which I know cannot be avoided.

I view this as a positive attribute. I’ll hear animals in danger and I’ll very rarely miss out on important information.

Special interests.

I become particularly engrossed in my passion and admiration for animals, which has become my area of high education study. I talk about goats (alot) to anybody who’ll listen, really and I wish to become an animal behaviourist. I absolutely adore animals, we share a special bond and and I wish for them to be involved in my every day thoughts and routine.

I love that my Autism has expanded my interest of animals and that I’ve had the ability to maintain such a special interest throughout the duration of my life.

Understanding sarcasm.

In light of recent weeks, I’ve discovered that I can only understand sarcasm if I’m the one issuing the sarcastic comment. However, if another person makes a sarcastic statement, I cannot always interpret it, meaning I quite often take things literally and become confused about the situation.

Autism and me – Autism Awareness Month

Autism

It’s Autism Awareness Month throughout the whole duration of April and the second one I’ve proudly celebrated. (Yay!) I’ll regularly be updating my blog throughout the duration of April to share more in relation to Autism Awareness.

I first began blogging about my Autism in 2017, a year after receiving my diagnosis.

Just yesterday, my Tutor told me to take it easy after undergoing Autistic meltdowns and subjecting to my tendencies to give myself too many tasks to handle (oops!) I’m making it my mission to find a balance in life, between working and avoiding falling into a rut of overdoing things.

However I struggle to rest, but I love to write, so here I am!

Prior to receiving my diagnosis, I lacked knowledge on all things Autism, and I certainly had no understanding of an Autism Awareness Month. Heck, I thought I knew what Autism looked like… (I’ll see myself out).

I’m proud of my Autism, I embrace my differences and I’m proud of my passions. I wish for everybody to feel pride in themselves, their accomplishments and the strength of overcoming a bad day. The World needs more love and less judgement, to accept differences instead of attempting to cure them.

Despite everything, and the constant battles I face to accept myself for who I am, I wouldn’t change my animal-loving self, and I most definitely wouldn’t change my Autism. Autism isn’t a disease, why should we wish to cure it?

Everyone has a mountain to climb and autism has not been my mountain, it has been my opportunity for victory.

Throughout the years, my knowledge and understanding on Autism has expanded significantly. I’m aware of not only the difficulties I face on a personal day-to-day basis, but I made it my upmost aim to gain a wider understanding into mutual struggles shared by those on the vast spectrum, because I wanted to help. I found that it’s not only important to accept ourselves, but to accept others, too. Be kind to others, be kind to ourselves.

Though having said that, it’s apparent that no two people on the Autistic spectrum are the same, as often misjudged, and it’s vital that we establish that. The spectrum is large, filled with people of all ages, genders and races. We hold unique interests that hold high levels of importance to us, we communicate and understand things to a different degree and develop at different paces.

None of that is wrong, it’s diverse.

I find that I easily become engrossed in a subject area and devote my energies to that, I love sharing my interests with others, which is why I constantly talk about goats and the reason I’ve been super engaged with my Behavioural Ecology module. I believe that my Autism and my strong passion for animals alongside the bonds I continue to form with them as companions lead to me opting to go down an animal related career path.

Autism awareness is crucial, always. Our conditions don’t magically erase after reaching adulthood. I was diagnosed in my late teens and others have been diagnosed in their 50’s. Aspies face our fair share of challenges and are often misunderstood following the lack of knowledge in specific areas. Ie: sensory overloads and autistic burnouts. Our behaviours have a tendency to be recognised oppositely, our quietness can be seen as rudeness, our politeness can be viewed as evolving attachment issues. We can often become confused by small talk and sarcasm efforts, distressed in busy places and caught up in our favourite activity, but that doesn’t mean we should be overlooked.

It’s hard to adapt in an ever-changing society when change is one of your largest fears.

My Autism diagnosis changed my life, quite literally, for the better. I’ve evolved to an acceptance stage after periods of shame and embarrassment. I love opening up about my Autism, after recognising that I have no reason to be ashamed, looking up to fellow animal lovers including Temple Grandin and the wonderful people I met in my support groups. I’ve learned more about myself and my struggles, and have used them as stepping stones to achieve wonderful milestones. I’ve made friends, I’ve made memories. But most importantly, I’ve grown.

For more information about Autism, please visit The National Autistic Society here:

https://www.autism.org.uk

Autism and me: Suffering or growing?

Autism

It’s vastly approaching the 3-year bracket in which I received my Autism diagnosis back in 2016.

Time has truly flown by!

I often hear the term “suffering from Autism” which I felt encouraged to shed some light on, as somebody on the complex Autistic spectrum.

I understand that the spectrum is large and people enlisted upon it face their share of physical and mental difficulties. Everybody, of course, is entitled to their own opinion.

This is a reflection upon my story so far.

Autism for me has been a challenge, a continuous one beginning with acceptance and understanding, to growing the strength to challenge myself daily and to overcome any hurdles lingering in my direction.

Autism is a way of being. It is pervasive; it colours every experience, every sensation, perception, thought, emotion, and encounter every aspect of existence.

Some days I can wholeheartedly conquer The World and my intrusive thoughts. I can surprise myself with my strength and determination to tackle scary situations. Other days I simply cannot hinder the complexity of my thoughts, I cannot leave the house or tackle a conversation.

Balance is the key to life and that is okay.

I no longer devote time to questioning my struggles and areas of weakness. Instead, I accept them and the stage I am at. I use them as stepping stones for overcoming future hurdles and as indicators of the times I’ve refused to be beaten.

I’ve not once considered myself to suffer with Autism. Although, initially, I struggled to associate myself with my condition and would easily become distressed when the subject was mentioned. I remained ridden with questions until I attended support groups and met other like-minded people like myself.

Adults on the spectrum with inspiring stories to tell, achieving amazing milestones and overcoming the biggest obstacles in life.

I once believed receiving an Autism diagnosis would be the end of The World. It seemed catastrophic and daunting and it certainly does frustrate me at times. But I began to realise that my Autism wasn’t the issue, the way I viewed myself was.

I have so much to thank my diagnosis for.

My Autism diagnosis wasn’t the end of The World, but the beginning of a new one.

I face my fair share of mental problems stemming from anxiety and fears of the unknown. But I’ve slowly (but surely!) transitioned as somebody embarrassed of my diagnosis to somebody sharing my story willingly with The World.

And that is such a beautiful concept. Acceptance is wonderful and massively freeing.

I started to acknowledge that Autism is a profound strength of mine. With the likes of a well-known animal loving Scientist Temple Grandin and Broadcaster Chris Packham, I feel overjoyed to share a diagnosis with such intelligent people.

During one stage, where I began struggling with my lowest bouts of Depression, I narrowly avoided talking about my Autism. Over the years, I received multiple diagnosis’ and it felt like another label to add to the pile, I felt ashamed and every inch of me wanted to be normal.

I’m not suffering. Even throughout the days I struggle to leave the comfort of my home, the days I simply cannot maintain a meaningful conversation or on the days I cry following an Autistic meltdown or from a sensory overload.

I’m not suffering. I’m learning and I’m growing. And although the journey may be painful at times, often leaving me ridden with masses of questions with regards to myself, my worth and my abilities, I can acknowledge the progress I’ve made so far, which only encourages me to keep going.

To find strength, to seek happiness and to be brave.

I look back at my past self with pride and admiration for enabling myself to thrive in places I never imagined myself to. I’m learning the art of speaking to new people without assistance, the task of creating long lasting friendships and visiting new places.

My Autism isn’t making me suffer, it’s making me resilient.

I’m not suffering, I’m growing. Every day I am finding myself and transitioning into the person I’ve always longed to be.

Autism and me – an acceptance journey

Autism

That’s the thing. I never anticipated being a 19-year-old sitting face to face with my Therapist discussing the possibilities of an Autism diagnosis.

It seems, my wonderful Therapist had picked up on possible Autistic traits in me during our sessions together (for my Anorexia Nervosa) which had mutually been a struggle for a while. My inability to express my feelings, thoughts and emotions without great difficulty and high intensities of distress and agitation. I could willingly speak endlessly about animals, but every other subject seemed to be a chore. I also struggled to maintain eye contact and would often stare at the floor or at the wall during our chats together, when I could actually form a sentence instead of nervously giggling. Alongside an inability to cope with changes in appointments (I adored sticking rigidly to Thursdays at 12!) and my inability to understand sarcasm.

In April 2016, I was diagnosed with Autism. (ASD). My condition unknowingly present from birth, but not picked up on until later in my teenage years after a lengthy assessment process where I became increasingly distressed and impatient. I always remained aware that something about me was different, but I could never quite pinpoint what that was. The wait was gruelling and torturous and each day I would hurry home excitedly hoping to be met with an appointment letter, with my disappointment only growing as I waited longer and longer.

An Autism diagnosis is life-changing, but not defining.

With increasing numbers of adults diagnosed with the condition, mostly due to the ability to mask and imitate those around us as a means of fitting in and seeming less “odd”. Though, the thing is, I never purposely intended to be the same as those around me. So, personally, Autism has been a real journey of self discovery, finding out who I really am beyond the copying and uncomfortable habits I forced myself into.

And no. Autism isn’t solely a “Children’s condition” and it most certainly doesn’t disappear magically whilst growing up. Autistic children become Autistic adults – it’s a lifelong, developmental condition.

Unfortunately, I was prone to the stigma attached to Autism and (alongside my lack of knowledge) due to minimal awareness I thought I knew what Autism “looked like” in an individual, a huge part in the reason I like to raise awareness of my condition. So people understand, and accept, people for their uniqueness and their quirks. And so people stop putting a “face” to Autism, the condition affecting one in a hundred of us.

Autism isn’t a label that fits all.

To begin with, I viewed my diagnosis as a bad thing and became upset for a short period of time, until I grew to learn more about my new diagnosis and what it meant for myself and others.

Over two years along the line and I have finally found, not only comfort, but also acceptance in myself which may not have met without my diagnosis. Something I never imagined myself to need until it became present in my life. Fitting in the “missing puzzle” that had previously been vacant from my life and filling it with knowledge, happiness and self-worth. The acceptance of learning to love myself for the crazy goat lady I am. Animals being my interest, whilst others on the spectrum may have other areas of passion and happiness!

I grew determined to ensure my Autism didn’t restrict, or define, me in any way possible. Meaning I have overcome anxiety-ridden fears and have tackled many obstacles over the years. Including, my ability to use public transport alone (giving Ive planned the journey strictly!) my transition to university life in Wales, a completely new setting, being introduced to people I hadn’t previously met. And my recently new found ability to vocalise when I am finding a situation stressful – particularly busy places or loud noises.

Whilst challenging myself is exhilarating, it is also exhausting and I usually require days to rest after fighting my anxiety.

Autism doesn’t have a cure, though I wouldn’t choose to cure mine for The World. It remains as a lifelong condition with each day being a learning curve and a milestone in each individuals journey!

Autistic pride day!

Autism

18/06/2018 represents Autistic Pride Day.

But what exactly is the day all about?

Autistic pride day is the celebration of the neurodiversity of people on the autism spectrum. It celebrates what people with autism bring to the community and recognises their potential.

Pride being a huge component in the way I feel about my diagnosis. Admittedly, I do become frustrated with myself at times for finding “simple things” tough, but there’s nobody in life (Neurotypical or Autistic) who views everything as an easy ride.

We live in a World where anything other than the “norm” is considered “weird” and it’s vastly become something avoidable and scary. People with Autism aren’t weird, what’s weird is the stereotypes and the judgement. What’s weird is that Autistic people can be mistreated due to their disability, no fault of their own. People with disabilities are people too, people with big hearts capable of love and affection. People who shouldn’t be treated any less than the rest.

People deserving of acceptance.

I’m privileged to share my condition with an intelligent, bright and inspirational lady who makes me proud. Who I feel honoured to write about today.

Dr. Temple Grandin is an American Professor, alongside an animal and autism advocate. She is also one of many well recognised people diagnosed with Autism. A kind hearted, compassionate and strong individual. Grandin invented the “hug machine”, designed to assist those on the spectrum with hypersensitivities. Evidently, Autistic people are intelligent, they’re capable of achieving amazing things regardless of what outsiders may assume.

In recent times I’ve seen so much information staggered around online about curing Autism, how people with Autism are evil and how Autism is “caused.” Well, in my opinion, people who view and understand The World from a different and unique perspective aren’t evil, they’re fantastic. People who battle through each day despite personal difficulties aren’t evil, they’re courageous and strong.

But, hey! Guess what? The people making assumptions haven’t bothered to gain an insight into what Autism is and what it can mean for people on the spectrum. Therefore, they aren’t worth getting upset over. Autism isn’t an illness, it’s a lifelong disability present from birth but not always picked up on until later in life. Ie: you can be diagnosed in adulthood and autism doesn’t just magically disappear after childhood.

If Autism isn’t an illness, why would anybody want to cure it?

People aren’t robots. Let’s stop trying to model the “perfect person” and instead, accept people for who they are.

I struggle with many things, including loud noises and social anxiety, changes in routine and so on but my “cure” comes down to hard work and stepping out of my comfort zone. It doesn’t come from over the counter in the chemist, mid-evil research or fad articles written by narrow-minded people.

But people attempting to cure others just for being different, people forcing others to use bleach to cure their condition? They’re evil.

I’m proud of myself for accepting my Autism diagnosis, for allowing it to motivate me to overcome my areas of weakness, for never letting it define me as an individual. Autism is a taboo subject, unfortunately, but Aspies are stronger than the stigma. I’m meeting milestones, making memories and creating beautiful friendships – all of which can be difficult for people on the spectrum, but something I won’t let put a halt to my success.

I’m different and that’s okay. I wouldn’t change my Autism for anything, today, and every day, we can stand up and be proud of who we are, for not allowing our diagnosis to define us in a negative light. For bringing something special into The World.

Autism is amazing. And everybody on the spectrum? They’re amazing too! Autism pride is about accepting people for who they are and encouraging others to find pride in themselves and their abilities.

For more information on Autism, please visit The National Autistic Society.